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International Day Against Homophobia 2013

Photo by LewishamDreamer

It’s FRIDAY!

Today, May 17th 2013, marks the 9th annual International Day Against Homophobia (IDAHO) ((you may also have seen it written as IDAHOBIT (International Day Against Homophobia, Biphobia and Transphobia)).

IDAHO is a day where we should reflect on gay rights (or the lack there of) both home and abroad – something some of us can be guilty of forgetting about sometimes.

We have issues here the UK that’s for sure, we’re still fighting for the right to marry the person we love  (the ball is rolling, but the fight is far from over) and 5 to 7 percent of the LGBT people surveyed in the UK say that homophobia is very widespread. But things are getting better all the time – one day we will have marriage equality, we will be seen as equals next to our straight brothers and sisters.

But our problems here in the UK pale in comparison to those abroad. In Uganda politicians are falling over themselves to progress their ‘Kill The Gays Bill’  which would, as the name suggests, enforce death penalties on people engaging in ‘same-sex relations’ and other penalties for those supporting these “deviants”.

Meanwhile in Russia the Moscow authorities have denied a request to carry out a ‘gay pride parade’ in the city. This apparently falls under “compliance with ethics” as to allow such an event would not be patriotic, it seems “Moscow does not need such events”.

We may live in 2013, we may have equal marriage in an ever growing number of countries including several US states, we may have cars that drive themselves and space tourism – but apparently it’s not alright for everyone to be who they want to be. That’s so sad.

This IDAHO please spare a thought for couples all over the world who’re having to conduct their relationship in secret for fear of persecution or even death, then get angry – together we can make a change. If you are one of those people, stay strong, hold out – don’t let people tell you who you can and cannot be – you have every right

Official IDAHO website: http://www.idahomophobia.org/

Kindest Regards,

Tom
UKPositiveLad

It Starts With Me, what about you?

IMG_2040Good afternoon guys and gals,

You may remember a week or so back I posted about a new HIV awareness campaign in England called ‘It Starts With Me’ – designed to educate people about HIV, how it’s spread, how it’s prevented and what they can do to fight HIV.

Well the campaign is really in full swing now, with events and awareness materials rolling out across England.

Yesterday I returned from a trip to Berlin with my friend Anthony to find a ‘It Starts With Me’ t-shirt waiting on my door step. So I popped it on and took a few snaps, you’ll probably see me at a few events up and down the country – including pride events wearing it, talking to people about their attitudes towards sexual health, testing and HIV.

Some quick HIV related facts from the It Starts With Me website:

  • 1 in 4: The number of people with HIV in the UK aren’t aware that they have it
  • 10 years: how much shorter your life could be if you delay testing
  • 8 in 10: gay men get HIV from someone who doesn’t know they have it
  • 25-29: the age group in which the most gay men test HIV positive
  • 96%: Treatment for HIV can make you upto 96% less infectious to others

Please make sure to head over to the It Starts With Me website to find out more about HIV, and how YOU can stop it in its tracks.

Peace out!

Tom
UKPositiveLad

‘It Starts With Me’ – a new HIV campaign for England

startswithme1As many of you who have been following my writings for some time now will know, I have frequently lambasted the UK Government, Department of Health and Health Protection Agency for failing to take any decisive action to curb the rising rate of HIV infections in the UK.

In recent years there’ve been numerous repetitive campaigns about cancer, stroke, mental health, alcohol, drugs, fruit & veg, exercise – even barbequed food, but nothing about HIV since the late 1980s. Well that changes this month.

24th April 2013 marks the launch of ‘It Starts With Me‘, a campaign created by The Terrence Higgins Trust and funded by HIV Prevention England (HPE), via the Department of Health, a campaign that will run (at least initially) for two years – until April 2015.

‘It Starts With Me’ is a campaign that will be delivered online, via the press, via posters/condom packs in venues and via local outreach teams. HPE will funding national and regional organisations to promote the campaign up and down England.

 

The campaign focuses on:

  • Testing for HIV at least once every twelve months, and more frequently if they have taken a risk, or show symptoms of seroconversion illness.
  • Taking the medication they need to stay fit and well, if they have been diagnosed with HIV.
  • Protecting themselves during sex by using condoms and finding other ways to avoid risk.
  • Participating in community action by finding a way to support the campaign and spread the word to their friends and contacts.

 

Make sure to check out www.startswithme.org.uk, the website for the campaign, and watch the short introductory video, which includes many interesting facts like 1 in 4 people in the UK with HIV don’t know that they have the virus, and that treatment is easier than ever and dramatically reduces the risk of you passing the virus onto anyone else.

You can find out more at www.startswithme.org.uk and a the campaign’s facebook and twitter pages.

It Starts With Me.

Tom
UKPositiveLad

startswithme2

Walking for Life. Walking to make a difference.

On June 16th 2013 I will be taking part in the Terrence Higgins Trust‘s ‘Walk For Life’. The aim of the walk is to raise vital funds for the HIV Hardship Fund.

Imagine for a moment that you’re HIV positive (if you’re not already), you’ve got plenty on your plate to deal with as it is right? Now imagine you can’t afford to feed yourself, your family, keep a roof over your head or afford warm clothing for the winter. Things are bad with the economy right now, most of us are feeling the pinch – but it’s those who are already in a bad situation who are hit hardest at times like these.

When I was out of work, was forced to move back home and at the same time dealing with my HIV diagnosis I felt like I had few people to turn to and even fewer options to take. The Terrence Higgins Trust gave me a helping hand with its HIV Hardship Fund and their counsellors threw me a lifeline via MyHIV.org.uk – so taking part in this event is the least I can do.

Please give what you can, every penny you donate will go to helping those living in crisis with HIV up and down the UK. There are no overheads being taken from your donations, as those are covered by the registration fees paid by walkers like myself. If you’re a UK tax-payer please remember to click the ‘GiftAid’ box too and the Terrence Higgins Trust can claim back 25p for every £1 you donate. Thank you.

You can donate by following this link: http://uk.virginmoneygiving.com/ukpositivelad

Everyone who sponsors will get a shout out and a follow back on Twitter, and those who donate £50 or more will get a hand written thank you card from myself as a sign of my gratitude for doing such an amazing thing for others :)

All my love,

Tom
UKPositiveLad

Just Get Tested Already

Morning all,

On a daily basis I get maybe thirty or forty emails from people reading this column or people visiting my website. Some are asking for support, others asking questions about HIV, a few are even hate-mail (the crazies are everywhere) – and an alarming number telling me that they’ve never had a HIV and/or STI (Sexually Transmitted Infection) screening.

Of course I always handle these messages sensitively. I suggest that they should go and book themselves in for a full STI screening and even provide a link to the Terrence Higgins Trust website where they can pop in their
postcode and find a clinic near them. But the whole exchange often leaves me baffled and concerned. Many of these people are in their mid-to-late twenties – how they have got this far in life (presumably having sex along the way) and never having had a check up?

Is it simply a case of sticking their heads in the sand or is there something more going on here? Having spoken to some of them in more depth there’s definitely some ostrich like behaviour for sure, for some ignorance really is bliss, if you don’t know something is wrong then you don’t need to worry about it – but for others it’s a fear of the testing process itself, and this can only be due to lack of education around the topic.

Going for a STI screening really is not that big a deal. Honestly. I went for one only the other month (I go every six months – and so should you if you’re sexually active). Here’s what happened:

I arrived at the clinic at about 10am. I sat around watching Jeremy Kyle in the waiting room until I was called through by a doctor. They ask you a few simple questions:

Why’ve you come in today? “routine testing”,
Do you have any symptoms? “none”,
Any pre-existing conditions? “HIV-positive”.

After that I head back to the waiting room for a couple of minutes for a spot more Jezza (turns out he wasn’t the father). Then a nurse calls me through to one of the other rooms. She takes a couple of throat swabs (say “ahhhh”), a tiny swab from the end of my penis (it does pinch a little, but it doesn’t hurt), and a swab from my ass.  Another nurse comes into to take a couple of vials of blood and then I’m given a little bottle to go put a urine sample in. I’m good to go. That’s it! takes about 45 minutes, one hour tops. They’ll text me any results in two weeks time.

(If I didn’t already know that I was HIV-Positive they would have also offered a HIV Rapid Test, which gives you a result in 15 minutes)

It’s incredibly important that each of us get regular STI screenings. Most sexual health charities recommend twice a year or more frequent if you’re more sexually active. Whilst you may not have any symptoms you may still carry any number of infections without even knowing it. I myself had absolutely none of the ‘flu-like’ symptoms often associated with HIV and only found out at one of my regular screenings.

Getting checked out doesn’t just mean that you’re looking after yourself, it means you’re showing respect and looking out for those who you sleep with – after all you’d hope anyone you slept with to have been checked recently, wouldn’t you?

So if you’ve never been checked out, or maybe it’s been far too long since your last test perhaps today’s good deed could be calling up your clinic and booking yourself in for a little MOT. Don’t know where your nearest one is – sorry, that’s no excuse. Head over to THT.org.uk and click ‘Sexual health’ to use their ‘Service Finder’ tool.

Take care,

Tom
UKPositiveLad

Welcome to Club Insomnia

insomnia-alarm-clock

It’s 04:44am. I’m laying in bed. Wide awake.

I can hear the distant whoosh of cars on the main road, the hum of fridge freezer, that irritating high pitched noise that you’re not sure if it’s your ears or something buzzing or something else making it, and most disturbingly of all – my own thoughts.

I’ve been trying to get to sleep since midnight. I did all the right things – I had a relaxing bath, drank some water, took my pills, turned my phone off, turned my computer off, turned the lights off and got comfy. Sadly the sandman didn’t want to pay me a visit.

Laid there in total darkness I tried to clear my mind of all thoughts. But as soon as I’d done that they flooded back again. What am I going to do about money? What’s going on with that guy I like? Did I have plans for tomorrow? What do I need to do for work tomorrow? Oh god work tomorrow. Did I put my headphones on charge? Did I take my meds?  Whilst all the time thinking “WILL YOU JUST SHUT UP – I NEED TO SLEEP”.

At 3am I  realised sleep clearly wasn’t happening and at 4am I completely gave up all hope of achieving any sleep.

The medication I take to control my HIV, ATRIPLA, is made up of three drugs Emtricitabine, Tenofovir and Efavirenz. Apparently Efavirenz is widely know to cause insomnia – I’ve never been the best sleeper, but I can’t imagine that this is really helping matters. Some people have suggested that I move to another drug combination that doesn’t include Efavirenz but these aren’t available in single pill from the NHS and I don’t know how well I’d cope with multiple pill treatment – plus I don’t really want to burn my bridge with ATRIPLA if I don’t have to.

It’s now 5am. I have to get up for work at 7:30. Do I try and sleep for that 150 minutes, or do I just get up and go into work early? Whatever I do, however, I can confidently say that my Thursday will be a complete write-off. I’ll be heavily reliant on bad instant coffee to keep me awake at work, but it won’t be proper awake, it will be Zombie Tom – lights are on, but nobody is at home.

I really envy people who, like my pets, can just put their head down and go to sleep straight away. That’s never something that’s worked for me, I’ve always found it hard to get to sleep and it’s just getting harder as the years and pills continue.

Here’s a quote from  D.D. Barant that seems appropriate:

“I’ve got a bad case of the 3:00 am guilts – you know, when you lie in bed awake and replay all those things you didn’t do right? Because, as we all know, nothing solves insomnia like a nice warm glass of regret, depression and self-loathing.”

I hope you have a better Thursday than I’m going to.

Best wishes,

Tom
UKPositiveLad

Last week’s Gaydio chat – now available to listen to online!

Screen Shot 2013-01-24 at 09.33.07Ahoy-hoy,

Last week I was in Manchester from Thursday to Sunday. I attended a great event run by LGF, and got a chance to visit Chris & Emma in the Gaydio Studio!

It made a nice change from chatting with them on the phone! I spoke about my big disclosure, the ‘functional cure’ story concerning 14 patients in France, my appearance on BBC World News and the first birthday of rucomingout.com

As before you can download and listen to the show in MP3 by clicking HERE :)

If you want me to appear on your show please don’t hesitate to get in touch using the contact page on this site.

Photo 2013-03-28 11.49.15 AM

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Tom
UKPositiveLad

Screen Shot 2013-01-24 at 09.36.03

A year on, time to refocus…

Afternoon boys and girls,

How’re we all doing?

Just a little post to let you know that my column in the April issue of Attitude Magazine will be my last regular column for the publication. I’ve done a whole year with them now, each month I shared something with you. Right from dealing with my diagnosis in the early days, to writing about World AIDS Day, and even coming out publicly as a proud HIV-positive man. It’s time for a change.

They have a great HIV writers in Stefan Kyriazis and Dr Alex Vass, so I’m leaving you in capable hands.

What’ll I be doing? Well fear not, I’m shan’t be going too far. I plan to spend my time working more closely with LGBT & HIV charities up and down the UK – helping them get their message to as many people as possible. It’s the people on the ground, doing the leg work that make the real difference and that’s where I’ll be focusing my attention.

I also plan to further develop my site with more resources for people living with HIV and for those who want to learn more about it.  If you know a HIV charity, support group or social group that would like to be listed on UKPositiveLad.com please do get in touch.

Hope you all have a great week.

Tom
UKPositiveLad

Talking me, HIV and medication on BBC Worldwide News

Hi Guys,

This evening I was invited to go into the studio and talk about my life with HIV and how it affects my life – both physically and emotionally. This was off the back of the news that fourteen HIV+ patients in France have managed, after very early diagnosis, been able to successfully control their Viral Loads without the further need for medication.

I’ve done radio a few times before, but it was my first time on TV – so I apologise about seeming a little nervous! BBC Worldwide News reaches over 350m homes – so I felt a bit exposed!

Hope you like it.

Tom
UKPositiveLad

Good Vibrations – The LGMCe and Positive East

Afternoon all,

A quick event update for you all:

Positive East and the London Gay Men’s Chorus ensemble announced that they will be putting on
another show together to raise funds for the charity’s HIV support services for gay men in London.
The show is called Good Vibrations, and takes place in St Pancras Church on Saturday 13th April.

Following on from last year’s spectacular show the Chorus will put on another night of show

stopping tunes, with the usual extent of razzle dazzle people come to expect from the London Gay
Men’s Chorus!

Positive East and LGMC’s aims are deeply intertwined: both are working to change negative
preconceptions, and work towards a more enriched society.

The event will raise funds specifically in support of Positive East’s services for gay men in London.
It’s estimated that 1 in 12 men in London gay are HIV positive. There are more gay and bisexual men
living with HIV in London than ever before. This makes the work of Positive East, and their network
of one-to-one and group support sessions, more important than ever before.

It’s vital that people don’t become isolated from their communities as a result of their HIV status,
and supporting this event will help make sure that doesn’t happen.Tickets for this one-off show are available online, at www.ticketsource.co.uk/positiveeast

For further information you can call the box office on 020 7791 9353.

 

 

 

 

 

 

 

 

 

All the best,

Tom
UKPositiveLad